HI to all...I'm new to the site but want to share my story and hear about other people's experiences. I have Lupus Nephritis and just started dialysis even thought Im being transplanted in February. Peace to all you guys...Lupus sucks and nephritis sucks even more. My mom had lupus nephritis too but they cant confirm if its hereditary...come on....I've been through hell and back with this over the past 5 years or so....i may have lupus but it doesnt have me....anyone transplanted go on to have children? curious
I thought I should introduce myself. I've had diagnosed lupus/lupus nephritis for the past 7 years, and about 3 1/2 years ago my kidneys failed. I spent a year on dialysis and then got transplanted. I've been doing great since then. I had an E.Coli infection about a year ago that infected the new kidney, but things have since stabilized and my creatinine is back down to 1.1.
I know how frightening this disease can be, and wish I had had someone to turn to with my questions and concerns. So for any of you that have questions, etc., feel free to use me as a resource.
yep i got it. my kidneys are now 50 percent gone. im 22.
i dont want to take any medicine. at all. i donknow why i feel this way. i dotn feel any pain aside from a bit of RA. Thoughts?
Lupus poll!! yaay
What nationality are you?
What kind of everyday lupus pains do you have?
What type of lupus ails you?
Lupus Nephritis or SLE
Cutaneous Lupus: ACLE, SCLE, CCLE, or DLE
Drug- Induced Lupus
Neonatal Lupus (rare)
Lupus overlap (more than one type of Lupus)
Is Lupus eating us all alive?
I don tknow if this is a lupus thing or not, but im on 40 mg of prednisone bcause i was having severe chest pains. well today they started up again despite my doseage, plus i have this stabbing pain in the back of my left shoulder. Now the shoulder thing could be that I sleep wild and with wild folks :) but with lupus I just dont know. Damn ailment! Anway info would be greatly apprciated. Love.
xposted to all the lupus comm i could find
Hello I also have lupus and it too has begun to eat away at my organs it has although preferred my kidneys
anyway I don't have time to write a whole big story i'll save that for later on tonight when i can't sleep cause of my meds lol
this was just a quick hello to introduce myself
take care everyone
you can see my lupus webpage at http://www.freewebs.com/lupusawarenesscanada Current Mood: content